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Again we say thank you for the support and generosity from a wonderful group of people, With out you then none of this good news would have been possible, THANK YOU
Chloë last scan was stable not showing any new growth but from starting the charity/jammed fund and talking to bone cancer research who helps set up and helps us run our special named fund/charity we have found out more info one being that the survival rates are low as they don't catch the relapse early enough and research has shown that some ewing sarcomas have some very slow growing cells that don't react to chemo or radiotherapy that's why they relapse but have to wait for government to approve testing ect to be able to see which patients have those cells. We won't know true results for proton untill Chloë has the 10yr all clear (if Chloë keeps getting continuous stable results from scans this kinda shows that the proton is having a positive effect) xx
Sometimes adversity gives the impetus needed to change your world, Chloe has done that. How different she may have been without this journey as part of her life. Now she has a life richer and with more understanding and I'll hazard a guess, learnt about growing up much quicker than others her age.
Chloe's tests are back. Besides the Ewings she also has acute myeloid leukemia that has spread from her blood to her skin. They intend to start the chemo for the leukemia by Thursday, she'll have one week then 3 weeks for the body to recover if it doesn't recover sufficiently then that's it, nothing more they can do. She's been told survival is very poor. If she's lucky & chemo is helping she'll then need a bone marrow transplant from either one of her brothers whomever is a match.