General Medical issues thread

Oh dear @Seat0B , what a very stressful time you are going through and with you unwell yourself.

A friend went through similar and was getting the run around with the nursing homes
She engaged a broker?
Who seemed to able to get insider information for vacancies. The situation was solved quickly and far less stressful for all concerned.

Maybe make some initial enquiries with a broker, while waiting to see what the GP can do.

Thinking of you and sending hugs 🥰
Thanks @ellen10. I have already made contact with an aged care placement consultant who I feel confident may be able to help us and also harnessed the GP who thought he might be able to achieve something.
 
Perhaps just a visit to the GP for some assistance. Maybe reactive depression and uncertainty about the future has collided for her. She might just need some medical help and time. She's such a trooper that hopefully this too shall pass.

Dealing with ageing. We are well past that now, for over 10 years for all parents. Mum was very proactive and wanted to get into appropriate care for her issues at all the various stages which made everything easy. It's likely my sons having a battle getting me into one eventually.

When Dad was terminal with cancer he'd been treated at a private hospital. He clearly was in final stages but just 10 days into hospital the admin person started talking with mum, who was in no fit state, that she'd have to move dad into advanced care somewhere, basically anywhere but where he currently was. MrP and I had a solid talk with that admin person, and told them never to discuss anything like this with my mother again, that he would stay put until his private health cover did run out (another couple of weeks) and that we would cover the cost after that. He was already on morph drips and could not be discharged. Of course our intuition was right, he had passed within the week. But damn that bloody private hospital for trying this on my mum. It eventually went into receivership a decade later. I cheered.
She sees the GP regularly. Is on antidepressants. I am at Witt’s end I am going to try taking her out for drives when I get my wheelchair hopefully by the end of the week.
 
The content of this thread atm is all at once , sombre to the point of avoidance and yet prescribed reading.
Howsoever it happens, most of us here will face end of life decisions in the next decade or two and it is not a pleasant task.

The reality of declining competence with age is a challenge for which we are mostly untrained and unprepared ; historically belief and belief structures
provided comfort and hope at this time.
Belief , in a human group sense ( the flock) , has been socially engineered to become what seems to be essentially individual self care , the me generation.

It seems that the applied family and social support structures for the aged in today's world is generally at odds with a recipient's perception of the meaning and value of life.

There are a lot of minutes , hours, days, and months from the beginning of the end to completion.
I have recently observed such an occasion and found a cold lonely and flawed process for the recipient
Society should do better.

herewith endeth the sermon
 
Well mum has had a better week. She responded well to a further round (5 days) of IV antibiotics and has finally started the rehab program this morning. We watched her intake physical assessment on Friday and could only agree with the physio's assessment of 'very low' physical capabilities. They have started suggesting that we look ahead to the likelihood that mum will not meet the safety requirements to return to her home.

This is making me very annoyed, progressing to angry and now closing in on enraged with other family members. At the beginning of the year, I thought mum was already getting pretty marginal for staying at home, and said I would go to the local residential care facility and put her on the waiting list. My sister hit the roof and said absolutely not, mum wants to stay at home. My daughter and my niece (mum's power of attorney holders) also said that I should not do that. I was bullied into not doing what I thought was right. For heaven's sake, it's a waiting list, not a compulsory evacuation! If she got to the top and did not want to go, she would not have to go. But if you are not on the list and need to go, you can't go. As soon as the dust settled after the stroke, I again suggested it might be a good idea to put her name down. Again, I was howled down by my sister - you are so negative, you are writing her off, give her a chance to recover, she does not want to go to a nursing home, you will have to respect that. The granddaughters started to waver though, as her decline and various physical deficits were starting to become obvious to them. I probably should have just done it at that point, but I was stressed, bullied and also I have been quite sick for 3 weeks now with a cold type thing that just will nor go away. So I didn't do it then either.

Well guess what, now I deeply regret my inaction. The physio said - this is how it will go. She's unlikely to meet standard to live independently. She's already been here for 4 weeks (plus 1 week in the public hospital), and soon her insurer will give an ultimatum - discharge or start to pay yourselves. No one can afford that. So we (the hospital) will try to find her a place in a nursing home, and we will almost certainly fail to do so. Next step is we will try to persuade the public hospital to take her back. Problem is, she isn't really a hospital case now - no medical issues, just old age and needs care. So they will likely refuse. Then you will be under pressure to take her home and sort it out later. DO NOT DO IT. You may have to 'abandon' her at the hospital so they have no choice but to admit her until a nursing home bed can be found. Of course in return, you will have no choice about where the facility is (could be up to an hour's drive to the other side of town), or the quality of the place, by then you will just be glad to accept anything. So get onto it now and maybe something better will happen in the (likely) 2 weeks she now has before all this kicks off.

All my recalcitrant relatives now think it is a good idea for me to put her name down at a few places. What a total cluster f#$k that is too. Here's the paperwork we did for my dad, just for one home, because of course, they all have different forms, don't they.

View attachment 516502

I am looking into using an aged care placement consultant as I just cannot deal with it. But of course, that will cost money, which mum could afford. However, I am starting to suspect that my sister has a bit of an eye to her inheritance. I will not be getting anything from mum's estate when the time comes - I have no need of it and asked her to leave it to Seat Daughter and Seat Son.
Oh Dear @Seat0B - I am so sorry that you are having to deal with this. You do what you need to and if that includes a consultant go that route. Unfortunately family who don't want to accept reality ( or even discuss/prepare for it) - by their obstruction - make the path for their loved one worse with diminishing choices being available and decisions needing to be made under stress.
So - if I read correctly - it is your daughter and niece who are POA ( not you) but they expect you to get involved and help sort it out?
I hope you get the support you need and my thoughts are with you.
Hopefully they can all agree to get a broker to help out as you smartly suggest. I hope a respite bed in a suitable facility you like comes up soon.
❤️❤️
 
I am very afraid I am going to run into this problem in the not too distant future. Mrsdrron did not handle my hospitalisation well. Withdrawn,sits on the lounge and eats like a sparrow.

She sees the GP regularly. Is on antidepressants. I am at Witt’s end I am going to try taking her out for drives when I get my wheelchair hopefully by the end of the week.
So sorry to hear that Mrs Dr Ron is not coping so well at the moment. Its been such a long gruelling journey for your both for a while. Starting from your awful experience in Japan and I am sure this really affected Mrs DR Ron, being in a foreign country all alone and worrying about you.

And now with your many health issues and limited mobility, it has really shaken you and her. Your love of travelling has been really impacted and those experiences seem a long way off at the moment. Hoping with your GP support and antidepressants, there will be a turn for the better.

I admire your determination and resilience and wishing you both better days ahead. Sending you both big hugs.
 
Well my weight a week ago had dropped to 67Kg clothed. So I bought a couple of new shorts as the current ones drop to the floor. The new ones fit perfectly so I have gone from XL to S.
Nice that you can get in to a smaller size @drron but a pity it has been due to your mishap, surgery and rehabilitation.
Hope all the misfortune for you both is behind you, and you and @mrs.dr.ron can enjoys some travels 🙏
Now time for you to get a new pink jacket 😉!
 
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MrsP finished her Alzheimer's drug trial on Tuesday. She returns in 5 weeks for an end of study visit and then 3-4 weeks later to commence the trial extension when she will be on the actual test drug for 25 months. Fingers crossed.
Good to hear a blood test is in clinical trials in Australia.
 
Residential accomodation deposit - the lump sum required to secure the room.
It can also be paid partly via a part lump sum and progressive payments but the progressive payments have a high interest rate.

This is means tested. Clients with no means are subsidised by the govt


nursing home
Can you please define the word subsidised? By that I mean does the govt pay the difference between the forfeited amount (85% of pension) and the amount a self-funded client pays. My understanding is that this does not happen.

In summary does the aged care provider receive the same amount in total from a low means (concession) client as a fully funded person? If not then it means that a fully funded person is subsiding all the concessions clients!
 
does the govt pay the difference between the forfeited amount (85% of pension) and the amount a self-funded client pays

Residential aged care (so called Nursing homes = NH) are funded through several streams
The government has determined all services that a NH might be required to provide.
Nursing homes are a misnomer actually as there the workers there are mainly Carers. The RN is usually only one person per shift.

In short the costs of a NH are:
Accomodation - the building/room/ ensuites - the capital cost of providing an aged care "residence"
Clinical care - the actual nursing care relating to health
Non clinical care - mobility/ personal hygiene/ social/ recreational activities
Meals/cleaning/laundry/heating/facility maintenance


The AusGoV provides funding through:
1)The AN-ACC funding Model which calculates the clinical and non clinical needs of every resident irrespective of financial means.
AN-ACC = Australian National Aged Care Classification

2) Supplements
- for specialised individual needs such as specialised, wound dressings, tube feeding, etc
- Hoteling supplement- include everyday services such as catering, cleaning, laundry.
- Supplements are also provided to the NH if a resident is deemed by Services Australia to not have the means to fully pay the Residential accomodation deposit (RAD)

3)Capital grants

Residents of means also provide funding to the NH through:
All prospective NH residents should get a Service Australia mean assessment of their income and assets
Of course it is not compulsory to undertake this assessment. However a non assessed prospective resident will have to pay the full price

From the Means Assessment, Services Australia determine the amount payable by the individual prospective resident for:

1) Accomodation payments
- payable through a one off Residential accomodation Deposit (RAD) , or Daily accomodation payment (DAP ) if the resident does not have the lump sum.
- These payments are highly regulated by the AusGov with RAD amounts in excess of $750K requiring approval from the IHACPA (Independent Health and Aged Care Pricing Authority). However it is common these days for the RAD to be nearly $1M depending on location.

2) Means tested fees which has 2 components
(a) Hoteling contribution -this is supposed to contribute toward the Hoteling supplement that the Govt pays. Daily cap but no lifetime cap
(b) Non clinical contribution - this is supposed to contribute toward the non clinical component of the AN-ACC funding. Annual and lifetime cap of 4 years applies

3) The Basic daily fee
- which everyone pays regardless of means
- capped at 85% of the aged pension.

Summary
Basically those with no means will only pay the basic daily fee.
Those with means will pay the basic daily fee + proportionately according to their means, the accomodation payment and means test fees.

Some would say there is a subsidy from the Residents with means, to the residents without means - because some pay more and some pay less and the extent that the Goverment does not have to fully fund 100% of residential aged care means that some residents are assisting the government to cover the costs of those without means.

There are safeguared for those who are of low means:
(1) Residential Aged Care providers are required to maintain a certain % of supported residents in their facilities.
- Some would suggest this is evidence that there is some amount of cross subsidy.
(2) Admission to a NH is still based on clinical need.
(3) The Aged Care Act prohibits discrimination on basis of financial means.

While these guardrails exist, I think those with means might get in faster.
Like my father. He still drives his car and he applied and got in with no waiting list, though I would class him as borderline.
Additionally, the Self funded have an advantage is a greater selection of accomodation types including single rooms.
 
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