General Medical issues thread

tgh

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One of swmbo's (multifarious) friends is progressing through chemo after a mastectomy.
A strong minded , older, fit, lone ,female.. she started out to just nail it..but reality is taking its toll.
We ( along with a cast of dozens) are helping where we can but it's a lone trek…..
 

rogerkambah

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One of swmbo's (multifarious) friends is progressing through chemo after a mastectomy.
A strong minded , older, fit, lone ,female.. she started out to just nail it..but reality is taking its toll.
We ( along with a cast of dozens) are helping where we can but it's a lone trek…..
Yeah, chemo is a horrible regime. Some of the side effects vary from day to day, so much so that I found it I could never really plan ahead. If it works, as my first course did, although it took more than a year, then you feel you are getting somewhere, even if you have been dragged down sometimes to very low points. However, my last 6 months seemed to barely hold the tumour, I had no quality of life and the side effects were killing me.
Your wife's friend will need support, even if she is very independent and believes she can manage by herself.
 

prozac

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Maybe the AZ risk is not as bad as reported. Results of an Oxford Uni study (COVID-19 and cerebral venous thrombosis: a retrospective cohort study of 513,284 confirmed COVID-19 cases) indicate: 4 in 1 million people experience cerebral venous thrombosis after getting the Pfizer or Moderna vaccine, versus 5 in 1 million people for the AstraZeneca vaccine. The risk of getting CVT is much higher for those who get COVID-19 -- 39 in a million patients.
According to John Hopkins Medicine ( John Hopkins - CVST) "CVST (cerebral venous sinus thrombosis) is a rare form of stroke. It affects about 5 people in 1 million each year. The risk for this kind of stroke in newborns is greatest during the first month. Overall, about 3 out of 300,000 children and teens up to age 18 will have a stroke. "
Not much different to the risk from vaccination of either the Pfizer or AZ variety. I'll ask my conservative GP, maybe not a problem for me after all.
 

Katie

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Well, over the weekend we got the results of the Teen's ADOS testing. Level 2 ASD and a more fine tuned diagnosis of their ADHD as inattentive type (didn't get that detail from the first paed we saw, though I have a two page report with a bunch of numbers).
Not a complete surprise, but I am surprised at level 2, I'd thought maybe level 1.

OT, Speech therapy, and intensive psychology recommended, along with seeking NDIS funding and a carer's payment. We'll see if the latter two are possible. I'm also going to investigate some genomics and gene stuff, after a friend's experiences with that and her ASD kids.

At this stage, trying to figure out how to explain it to family. Each of my parents, and current step-mother coped OK with the info and didn't suggest anything crazy. DLN at school is supportive, but keen to get the finalised report. Not sure if the ILs understand what it is, but we'll probably discuss that tonight. Not sure Mr Katie understands what we're in for - he likened it to his dyslexia diagnosis as a kid, and his Mum got him therapy and they got it sorted/cured. This is a different ball game entirely. :/

(And for those who know the real me or social media me, like the ADHD, this is staying off my social media, unless I decided to start proselytising on social media :p Too many people know too little and have unhelpful suggestions, and I'm not open to that right now)
 
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prozac

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Well, over the weekend ...

(And for those who know the real me or social media me, like the ADHD, this is staying off my social media, unless I decided to start proselytising on social media :p Too many people know too little and have unhelpful suggestions, and I'm not open to that right now)
Given how open we all are in this group I figured we all kept this stuff within the group only. :)
What happens in GMI stays in GMI ... ;)
 
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Well, over the weekend we got the results of the Teen's ADOS testing. Level 2 ASD and a more fine tuned diagnosis of their ADHD as inattentive type (didn't get that detail from the first paed we saw, though I have a two page report with a bunch of numbers).
Not a complete surprise, but I am surprised at level 2, I'd thought maybe level 1.

OT, Speech therapy, and intensive psychology recommended, along with seeking NDIS funding and a carer's payment. We'll see if the latter two are possible. I'm also going to investigate some genomics and gene stuff, after a friend's experiences with that and her ASD kids.

At this stage, trying to figure out how to explain it to family. Each of my parents, and current step-mother coped OK with the info and didn't suggest anything crazy. DLN at school is supportive, but keen to get the finalised report. Not sure if the ILs understand what it is, but we'll probably discuss that tonight. Not sure Mr Katie understands what we're in for - he likened it to his dyslexia diagnosis as a kid, and his Mum got him therapy and they got it sorted/cured. This is a different ball game entirely. :/

(And for those who know the real me or social media me, like the ADHD, this is staying off my social media, unless I decided to start proselytising on social media :p Too many people know too little and have unhelpful suggestions, and I'm not open to that right now)
Good to have a diagnosis even though not quite as you thought. It will take time to work out how to make sure everyone (ILs esp by the sound of it) is across it. Hopefully they recognise your teen is the same person as always. Once you have time I would suggest investigating NDIS as a package may offer some financial support if needed esp in the future.
 
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Well, over the weekend we got the results of the Teen's ADOS testing. Level 2 ASD and a more fine tuned diagnosis of their ADHD as inattentive type (didn't get that detail from the first paed we saw, though I have a two page report with a bunch of numbers).
Not a complete surprise, but I am surprised at level 2, I'd thought maybe level 1.

OT, Speech therapy, and intensive psychology recommended, along with seeking NDIS funding and a carer's payment. We'll see if the latter two are possible. I'm also going to investigate some genomics and gene stuff, after a friend's experiences with that and her ASD kids.

At this stage, trying to figure out how to explain it to family. Each of my parents, and current step-mother coped OK with the info and didn't suggest anything crazy. DLN at school is supportive, but keen to get the finalised report. Not sure if the ILs understand what it is, but we'll probably discuss that tonight. Not sure Mr Katie understands what we're in for - he likened it to his dyslexia diagnosis as a kid, and his Mum got him therapy and they got it sorted/cured. This is a different ball game entirely. :/

(And for those who know the real me or social media me, like the ADHD, this is staying off my social media, unless I decided to start proselytising on social media :p Too many people know too little and have unhelpful suggestions, and I'm not open to that right now)
I had a fair bit of contact with level 2 ASD kids at a point in my life and (as with everything to do with kids), having a loving supportive family made such a difference to them. Challenges ahead and remember to also look after yourself where you can.
 

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